Developmental Disabilities Awareness in Maine

Supporting Inclusion and Planning for the Future in Maine

Each March, communities across the country recognize Developmental Disabilities Awareness Month. First proclaimed in 1987, the observance promotes inclusion and equal opportunity for individuals living with developmental disabilities.

Today the campaign is coordinated by the National Association of Councils on Developmental Disabilities and advocacy partners across the country — including organizations right here in Maine.

The message is simple:
People with disabilities are part of every community — including ours — and deserve the same opportunities to live, work, and participate in daily life.

What Is a Developmental Disability?

A developmental disability begins in childhood and usually lasts a lifetime.
By definition, it appears before age 22 and affects learning, behavior, mobility, communication, or independent living skills.

Causes may include:

• Genetic conditions
• Complications during pregnancy or birth
• Early childhood illness or injury
• Environmental exposures
• Unknown factors

Common examples include:

• Autism spectrum disorder
• Cerebral palsy
• Intellectual disabilities
• ADHD
• Speech and learning delays
• Hearing or vision impairment

Early Signs and Diagnosis

Early identification can dramatically improve long-term independence.

Parents and pediatricians monitor milestones such as speaking, walking, social interaction, and learning. If delays appear, additional evaluation may be recommended.

The Centers for Disease Control and Prevention continues to study developmental disabilities and improve early detection so children can receive support sooner.

How Common Are Developmental Disabilities?

Developmental disabilities are more common than many families expect.

• About 1 in 6 children in the United States has a developmental disability
• Autism affects about 1 in 36 children

These conditions affect children of every background — including families across Maine.

Support Services Available in Maine

Maine offers a strong network of programs designed to help children and adults live as independently as possible.

Families may receive support through:

• Early Intervention services (birth to age 3)
• Special education programs in local schools
• Adult developmental services
• Community case management
• In-home supports and day programs
• MaineCare waiver services

The Maine Department of Health and Human Services Office of Aging and Disability Services coordinates many of these programs and helps families access services at different life stages.

Education and Transition Into Adulthood

Federal law — the Individuals with Disabilities Education Act (IDEA) — guarantees access to special education and transition planning.

For Maine families, this transition period is often the most stressful. Around age 18–21, individuals move from school-based supports into adult service systems. Planning ahead is critical to avoid gaps in care, housing, and financial support.

Health and Quality of Life

A developmental disability does not prevent someone from living a full life.

With the right supports, many individuals in Maine:

• Work in their communities
• Participate in recreation programs
• Live independently or semi-independently
• Build relationships and social networks

However, they may also experience higher rates of medical conditions such as gastrointestinal disorders, anxiety, or asthma, making coordinated care especially important.

Planning for the Future: A Critical Step for Maine Families

One of the biggest concerns parents share is:
“What happens when I’m no longer here to help?”

Without proper planning, a financial gift or inheritance can unintentionally disqualify a loved one from vital benefits like MaineCare or SSI.

A special needs plan can:

• Protect eligibility for benefits
• Provide lifelong financial support
• Appoint trusted decision-makers
• Give future caregivers clear instructions

Planning early prevents crisis planning later.

You Don’t Have to Navigate This Alone

Families caring for a loved one with disabilities already manage medical care, education plans, and daily support. Legal planning should reduce stress — not add to it.

We help Maine families create customized plans that protect benefits, preserve independence, and provide long-term stability.

If you would like to talk about planning options for your family, we would be honored to help.